Announcing the First Adult Club Feet Forum!
On Friday, September 30, 2011, starting at 10 AM Pacific time, I will be hosting the first on-line Adult Club Feet Forum, in conjunction with the events being sponsored by the Ponsetti Institute as a part of the first International Club Foot Week. We will be using a Web meeting tool called ElluminateLive. As we get closer to the date, I will be posting the password and URL information on to everyone who wishes to participate. For that, I may need all who wish to participate to send me their email addresses so that you can be added to the attendee list for easier access to the forum. I should have that information soon.
The participant's code will post late tonight or early Thursday - stay tuned!
To get some training on the Elluminate platform, go to http://www.elluminate.com/Services/Training/Elluminate_Live!/?id=418 and see the Participants section, for online training, and a downloadable Participants Guide - get a little familiar with it so you spend your time in the forum enjoying the event rather than trying to figure out where you are and what to do.
Also - to get the relative time in your area re: the 10 AM Pacific time start, go to http://www.timeanddate.com/worldclock/converter.html and input San Francisco and the time of 10 AM and click on the Convert button.
The final topic list follows. There will be several polls, and some power point items, as well. See you there!!
Discussion Topics for Club Foot Week Conference
. What kinds of things have you done to
deal with your chronic pain? Medications, therapies, mechanical
solutions (shoe modifications, orthotics, etc.), massage, etc.
. What have doctors done for you that
worked, and what has not worked? How have you come to define "worked" as
it regards your feet? Immediate relief, temporary relief, long-term
relief?
. Share resources in your area (country, state, province, etc.) – for orthotics; for footwear; for footwear modifications.
. Who have you gotten the best results
with – chiropractor, podiatrist/chiropodist, orthopedist, physical
therapist, massage therapist, alternative medicines/therapies? Why do
you feel that has given you the best results?
.If you have had a fusion, how long have
you had it/them, and at what age were they done? What has been your
experience? Are you experiencing good/neutral/poor results? Are any of
your other joints causing you issues?
.What activities have you been able to
continue in as you’ve gotten older with PCF? What have you had to give
up? Have you learned to continue those activities in a modified manner?
. How does/has your partner, children,
relatives, friends, co-workers, employers respond to your limitations?
Have those limitations ever interfered with your ability to find a job?
What have you done to respond to those issues?
OK. So all you have to do is a) convince me that you have another topic, and it will be added to the list; b)mark your calendar for September 30, 2011 - that's a Friday, at 10 AM Pacific time; and c) vote for your top five. I will be harping on this until then. I plan on taking that day off work in order to give this my complete attention - I think its that important to me as a clubby. I hope you find it important enough to join us, spend some time meeting and sharing around the topics with other clubbies from around the world.
The only thing you have to lose is the idea that you are alone. Not anymore!
Notumbo/Willy Kiyotte
Where can I listen to the conference again? I had to leave and can't find it and I really would like to listen to it in its entirety and my husband would also like to listen to it as well.
ReplyDeleteI have read your comments and they are great. I have a right club foot and have never ever communicated with another person who has a surgically corrected club foot. I know a women who's club feet were turned to the normal position after birth and she never had a problem with them in her life. They were as good as normal. That same nerve/mussel disorder that is in my club foot is also in my lungs. Dianosed July 27th, 1996 by one of the first sleep doctors practicing in Dallas, Texas who got his degree from Standford University, where sleep apnea was first discovered. Man! I had trouble with thinking I was dieing every time I went to sleep, all my life! That first day on the CPAP System was the first time I woke up knowing I was going to live. The nerve/mussel disorder was causing my lungs not to pull in enough oxygen when I went to sleep. Watch out for other nerve/mussel disorders in the body that can not be seen if you have a club foot. My e-mail address is tkrusk@sbcglobal.net I would like to hear from anyone with a club foot.
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