OK, here we go. I have been asked to arrange the event/events for adults with post-club feet as a part of the Club Foot Week being sponsored by the Ponsetti Institute. It is scheduled for late September - exact dates will be posted here soon. But I need all of you to help make this a success. Here is what I am doing, and what I need help with:
1. I am working to locate and arrange a web-based conference package that is either cheap or free - no budget, you see. This conference will focus on (here is where the first help is needed, folks) how we have dealt with our symptoms, whether surgically or otherwise; what we do for temporary relief that works; problems communicating effectively with the medical community; footwear issues; social stigma issues; activity limitations, and the costs associated with the activities we do try to maintain; other. You see, "other" is where you come in. I want this forum to last for at least four hours, to permit people all over the world at least some chance of participating. So I would like the topics chosen to reflect as broad a set of needs as possible, without being so full as to make any discussion useless. Remember - this will NOT be the only shot at this - the Club Foot Week is intended to be a yearly event.
2. I will be putting together a Facebook page for the ACF community, for a greater degree of involvement. I would like input on things like focus, design, and degree of permissions for users to post, etc. I prefer some degree of openness, while retaining the ability to pull the plug on anyone abusing the community, if that should become necessary.
3. You tell me - what would you like to see in such an on-line conference?
This can only work if enough people get involved, and if they feel the event includes their own needs as a part of the mix. But that can only happen if people show up - both before and during the event.
So, what do you want it to be?
1. I am working to locate and arrange a web-based conference package that is either cheap or free - no budget, you see. This conference will focus on (here is where the first help is needed, folks) how we have dealt with our symptoms, whether surgically or otherwise; what we do for temporary relief that works; problems communicating effectively with the medical community; footwear issues; social stigma issues; activity limitations, and the costs associated with the activities we do try to maintain; other. You see, "other" is where you come in. I want this forum to last for at least four hours, to permit people all over the world at least some chance of participating. So I would like the topics chosen to reflect as broad a set of needs as possible, without being so full as to make any discussion useless. Remember - this will NOT be the only shot at this - the Club Foot Week is intended to be a yearly event.
2. I will be putting together a Facebook page for the ACF community, for a greater degree of involvement. I would like input on things like focus, design, and degree of permissions for users to post, etc. I prefer some degree of openness, while retaining the ability to pull the plug on anyone abusing the community, if that should become necessary.
3. You tell me - what would you like to see in such an on-line conference?
This can only work if enough people get involved, and if they feel the event includes their own needs as a part of the mix. But that can only happen if people show up - both before and during the event.
So, what do you want it to be?
Hey,
ReplyDeleteI think this is a great idea. I don't have any suggestions immediately come to mind but I am keen to participate in the on-line conference